Impactful resources to help rare & undiagnosed kids thrive
Many families struggle to receive a diagnosis for their children who have rare or complex conditions. Genetic testing can help them find the cause of their child’s symptoms and seek the appropriate treatment. However, some insurance companies do not cover genetic testing, leaving these families with an insurmountable financial burden. Take Part provides funding for families whose insurance denies them access to genetic testing, ensuring they can obtain the test needed to diagnose their child and secure necessary coverage. We work with institutions, like St. Louis Children’s Hospital, to provide a fund for these cases so no extra steps are needed to be taken by families already facing emotional and financial obstacles.
In July 2024 Take Part presented its largest donation to date — a $100,000 grant to St. Louis Children’s Hospital — to underwrite genetic tests for families whose insurance won’t pay for this critical first step toward a diagnosis. Made possible by the Foundation’s inaugural fundraising gala and its generous sponsors, the gift will give more children rapid access to lifesaving answers and personalized treatment options, advancing Take Part’s mission to close the diagnostic gap for rare pediatric disease patients.
We partner with organizations, like Will B. Inspired, who are already identifying veteran and first responder families who need health-related assistance. When these families have a child with a rare or undiagnosed disease, Take Part steps in to help meet medical needs, like genetic testing, that aren't being covered by insurance.
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