Funding Research That Lead to Life-Saving Discoveries
Since Take Part’s founding in 2021, the foundation has raised more than $500,000 to fund crucial research and close the gap for families who are denied coverage to testing by their insurance.
Take Part’s approach to funding research is unique. Similar to how an idea becomes a sustainable business, projects have a plan, anticipated milestones and are reviewed by the foundation’s advisors to ensure validity. The organization aspires to be a hub of information for families and doctors around the world who are working on rare pediatric diseases. Sharing findings mitigates the communication disconnect that often occurs. Take Part’s approach leads to collaboration and potential advancement.
Each project is required to present a research case description, anticipated funding needs, project timing and proposed milestones. Take Part also requires that the team applying have 20% of the initial project funding in place. The foundation’s advisors (composed of doctors, business executives and leaders within partner organizations) then review the application for validity of the project model and medical assumptions, financial evaluation and proof of concept.
Once accepted, the foundation assigns a project manager to each Take Part project. The project manager will be responsible for oversight,
including collaborating to set agreed-upon project milestones and metrics, ensuring the receipt of updates on results, reporting to and
validating with the foundation’s advisory board, and allocating project funding to the designated institution. It’s important to note that funding will only be issued to the institution affiliated with the project; funding will not be given directly to the research team or any individual.
We are looking for families or a group of doctors/researchers who are trying to work towards publication that can lead to ongoing funding from some of the largest institutions. These rare diseases will only get attention if:
There are enough people who can pay for the cure; or if there is a clear path to discovering something.
With so few people having the same disease, we find there is a lot of interest in what we will find in these publication and studies.
We won’t find a cure for all of our projects, but we will continue to make progress in our knowledge of what we can do to help each and every child and family impacted by these rare diseases.
If you are interested in suggesting a future project, please click below and fill out the application.
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